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Associated
Contacts – Link
Partners
Link
Partners
If you would
like to add a reciprocal link on this page to your website, you
should email us. Include in your email, your website url and a brief
description of your site.
LinkPartners.com
The Easy Way to Find Link
Swap Partners
Car
Rentals
Charity
Please
tell us if you have any information about Madeleine
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Welcome
to Hayleys Progeria Page!
This website
is dedicated to our daughter, Hayley Okines who suffers from an
extremely rare genetic condition called Hutchinson Gilford Progeria
Syndrome, also known as HGPS or Progeria.
At present
there are about 45 known cases of Progeria around the world and
only 4 in the UK, which is where we live. Progeria is a progressive
terminal condition which mimics many of the characteristics of
the normal ageing process, but faster...a lot faster...about 8
times faster in fact! A 10 year old progeria child will have the
appearance of an octogenerian with symptoms including baldness,
arthritis and heart problems...but with the mind of a 10 year
old!
The average
lifespan of children with Progeria is about 13 and at present
there is no cure.
The purpose of this website is to educate, inform and most importantly
raise awareness of this little known disease. When Hayley was
diagnosed with Progeria in 1999 we had never heard of it and neither
did any of our friends or family. With the help of the internet
we were able to build an understanding of Progeria as well as
finding organisations and individuals that can help.
A
song has been released on CD and all profits are being donated
to The Progeria Research Foundation. For details please go to
Hayleys website.
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Finance
Lawyers of Spain – Fluent in English, Lawyers of Spain will
happily aid the smooth running of your property purchase, enabling you
to sit back, relax and enjoy your home in the sun.
easy2loan.com works with all major lending entities to offer
low rate Spanish Mortgages for foreigners purchasing property in Spain.
Green Independent – At Green Independent we deliver the
most professional mortgage, insurance and investment advice that the
Costa del Sol has to offer
HIFX is the UK's premier provider of corporate foreign exchange
and cash deposit services.
Furniture
Packages
Jobs
in Spain
Wemploy
Recruitment in Spain
Jobs in Spain and Gibraltar for expats. Specialist Recruitment Consultants
Costa del Sol.
News
Paper
A weekly newspaper distributed in southern Spain every Friday.
The only free, newspaper
style, guide for English speaking holiday makers to the Costa del Sol.
Postal
Service
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Offex
– Do you have a problem sending and
receiving mail and parcels?
Offex
h as a range of services to
suit both the business and private sectors. Local, national and
international deliveries and collections offices on the Costa del
Sol, Costa Blanca and Costa Calida.
Costa Del Sol: 952 577 816
The Coasts' favourite courier and postal service. |
Properties
for Sale / Properties
If you are considering
buying property while on your holiday we can arrange appointments with
developers and take you to them. If you have already bought you may
need furniture. We can take you to a variety of furniture show rooms
which offer complete packages. If there is anywhere you want to visit
whilst on your holiday Amigos Holiday Rentals would be happy to help.
For more information
send Email
Website
and Graphics/Computers
Website
Design & Online Graphics Creation
– To find out how little it can cost. Click
here
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